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Three years in

This week was my three year sickiversary with ME/CFS. I posted the below two things on Instagram. Me this morning, trying to cure...

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It’s hard not to resent this body

It’s hard not to resent this body. Even while on a long weekend where there’s no pressure at all, I wake up feeling unslept,...

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Adventures in being lectured while naked on a massage table

I am often in physical pain with my ME/CFS – but unless I’ve really blown out and am suffering bad PEM (post-exertional...

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Medical burnout

I’ve been ill with ME/CFS for the nearly three years now, and my symptoms wax and wain with the seasons, the winds and any kind of...

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Saint Monday, Yackandandah

I’m currently in Albury, taking a week off work, sleeping an absolute ton, trying to read for pleasure (a hobby oft neglected when...

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Tired food redux — new grub on the block

I’ve written before about some of my favourite tired person food options. When you have ME/CFS, sometimes using a kitchen knife seems...

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Who you are when you aren’t all you were before

One of the most difficult things to grapple with from my rapid fall from healthy person to a chronically ill person living with ME/CFS has...

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A few delicious things…

Even though, as I mentioned in my earlier post, my Sydney trip was tiring, I still got to eat some delicious things. Here’s some...

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Sobering Sydney and other recent adventures

It’s been a long time between blogs. I guess I have been pretty ‘busy’ most of the time lately — including the...

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Tethered

I’m still recovering from a massive crash I had over the past month, which left me out of the office for weeks. I’m back at...

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The highs and the crushing lows

I haven’t written on here for ages. Christmas was low key and relaxed – it was good to spend time with my family, read some...

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Two years and then some

At the beginning of November, my two year mark of living with ME/CFS ticked over. At the time, I considered writing something down...

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