ME/CFS

2020 this doesn’t bode well…

I’ve just spent the last two and a half weeks in a bad ME/CFS crash after our major conference at work. The conference wipes me out every...

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Airport blues

Sitting here waiting for my flight back to Canberra after my holiday and starting to feel anxiety creeping back in. I’m really tired,...

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The ME/CFS five year anniversary roadshow

I’m currently living out of a Tarago that has been converted into a campervan, hopping around the small towns near Byron Bay. I booked a...

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Burnout burnout

This year has been pretty hectic. Big staff changes at work, covering various responsibilities and always having new ones land on my plate,...

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Homeowner and tired person

Oh wow, I haven’t written on here since April. It has really been a crazy year. In May, we found out we were basically getting evicted...

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Islands and angsts

I haven’t written on her for ages, which is pretty much the usual story anyway! I got through the mega-conference at work, again...

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Pressure points

The last six months has been hard and tiring, and I am now back in the midst of hard and tiring as we prepare for a major event at work....

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Stress sewing

Just sitting here wondering why my mother has disappeared ‘up the street’ for six hours when we are about to embark on an...

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2018 you are being a turd year

It’s a long weekend, and I’m again spending it alone, sick, exhausted and completely effing miserable. The last few months have...

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Hermiting

Lately I’ve been hermiting. My urge to socialise is just very low right now. Earlier in the year I felt desperately isolated and...

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The inherent vagueness of acceptance

Another long weekend stretches before me, with no money, no energy and no prospects of social interaction because everyone has other people...

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Melbourne and the months before

I just got back from spending a week in Melbourne, and I’ve had the Easter long weekend to rest and recover from the trip — in...

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