betty loves blogging writings, rambles, rants, meals and photos Sun, 10 Sep 2017 10:40:31 +0000 en-US hourly 1 74003826 Adventures in being lectured while naked on a massage table Sun, 10 Sep 2017 05:52:31 +0000 I am often in physical pain with my ME/CFS – but unless I’ve really blown out and am suffering bad PEM (post-exertional malaise), the pain is just the kind of generalised aching, like you would get if you had a flu. Also sometimes a bit of stiffness, but I do stretch and try to walk …]]> 0 7690 Medical burnout Sun, 10 Sep 2017 05:07:46 +0000 I’ve been ill with ME/CFS for the nearly three years now, and my symptoms wax and wain with the seasons, the winds and any kind of randomness. So I’m not surprised when something new goes wrong. But this year I am having a new issue — I can barely bring myself to go to medical …]]> 1 7682 Saint Monday, Yackandandah Wed, 30 Aug 2017 09:14:18 +0000 I’m currently in Albury, taking a week off work, sleeping an absolute ton, trying to read for pleasure (a hobby oft neglected when I’m working, as all my brain energy goes on work) and catching up with the parentals. Mum and I decided to go for a day trip to Yackandandah and Beechworth, just to …]]> 0 7671 Tired food redux — new grub on the block Sun, 16 Jul 2017 08:13:23 +0000 I’ve written before about some of my favourite tired person food options. When you have ME/CFS, sometimes using a kitchen knife seems like a real hazard, and energy used cooking is energy you can’t use on something else (I still like cooking though and still do it for pleasure on the weekends!) But there are …]]> 7658 Who you are when you aren’t all you were before Sun, 16 Jul 2017 04:28:17 +0000 One of the most difficult things to grapple with from my rapid fall from healthy person to a chronically ill person living with ME/CFS has been the gradual slipping away of parts of my identity. The part that could still party and stay up late if I wanted to. The part that would travel the …]]> 7644 A few delicious things… Sun, 09 Jul 2017 09:23:22 +0000 Even though, as I mentioned in my earlier post, my Sydney trip was tiring, I still got to eat some delicious things. Here’s some quick tips. Poke bowls from Salmon and Bear in Newtown This is a pretty crap picture of the substantially healthier dinner I had last night – a very very yum poke …]]> 7638 Sobering Sydney and other recent adventures Wed, 05 Jul 2017 05:53:14 +0000 It’s been a long time between blogs. I guess I have been pretty ‘busy’ most of the time lately — including the ‘busyness’ of resting and just trying to manage an illness and to get by, which really takes up the most time and energy of all. I got promoted at work, which has meant …]]> 1 7625 Tethered Sun, 19 Mar 2017 07:51:34 +0000 I’m still recovering from a massive crash I had over the past month, which left me out of the office for weeks. I’m back at work, but still getting extra tired extra easily, and sleeping a lot. But better than I was in the worst of it. I think that the thing I found hardest …]]> 7618 The highs and the crushing lows Thu, 23 Feb 2017 10:53:55 +0000 I haven’t written on here for ages. Christmas was low key and relaxed – it was good to spend time with my family, read some books and dress the dogs in costumes. But I also really struggled with feeling depressed around new year – another new year’s eve at home by myself not doing anything, another …]]> 2 7607 Two years and then some Sun, 18 Dec 2016 08:27:09 +0000 At the beginning of November, my two year mark of living with ME/CFS ticked over. At the time, I considered writing something down (similar to the piece I wrote at the one-year mark). Some sort of profound musing on what two years of chronic illness has taught me. But you know what? I was too tired. …]]> 7599